‘We're happy as we are’: the experience of living with possible undiagnosed dementia

نویسندگان

چکیده

Abstract It is estimated that a third of people in the United Kingdom with signs dementia are living without formal diagnosis. In Wales, proportion nearly half. Some explanations for gap between prevalence and number diagnoses include long-term partner/spouse systemic barriers to This study recruited participants from Cognitive Function Ageing Studies-Wales (CFAS-Wales) cohort, randomly selected aged over 65 two areas who met criteria diagnosis did not have record general practice records. We aimed understand more about contexts circumstances live cope cognitive difficulties having dementia. conducted qualitative interviews six their spouses, additionally four family members three invited were unable take part. Themes generated using thematic analysis. present argument there an adaptive response low service levels complex interaction expectations service, perceptions legitimacy problems right make demands on services. paper concludes could be done address treatment services those symptoms dementia, but value placed by some individuals might lower than anticipated government policy.

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ژورنال

عنوان ژورنال: Ageing & Society

سال: 2021

ISSN: ['0144-686X', '1469-1779']

DOI: https://doi.org/10.1017/s0144686x21001495